Sharing your love with family is not selfish. If the condition is genetic and you know you would pass it on and don't think you could handle that, it would be one thing to think long and hard about. But to not live a life because down the line you won't be here... well shoot... any of us could be hit by a bus tomorrow. That does not stop us from living our lives now. Is it selfish to have children and raise them best you can and leave them knowing they were loved? If that is so... you nor I would not be here to ask and answer!
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I would like to die alone because I couldn't stand the thought of putting my family through that pain
I would life to its fullest. Not knowing the illness it is hard to say exactly but my thought is medicine is ever evolving at a very fast rate. My son should never have seen his first birthday. That went on for many years. He is now 29. Gainfully employed with graduate degrees, married and very happy. He still deals with health issues and lives like he won't live as long as most yet does not stop his life from going forward. He and his wife are saving and planning to retire when they are fifty just in case. If he lives beyond his expectations he will have lots of free time to play! Never give up. You never know what awaits you around the corner.
I have been diagnosed with multiple serious illnesses, 2/3 of which have changed my life and continue to do so. What exactly is the question?
I wouldnt go out and make myself a burden, but If it happened by accident(love) I guess.....
You won't put them thru heartache and pain. Find the most fun and joy in your life you can. ( move away from people you don't like ). And just do the best you can, that's all you can do. : )
Well, I would think your children would be glad they were born and live a perfectly happy life after you were gone, to be honest.
Yes, what is the point of this life if we have to live through our limited time here, all alone?, the truth of the matter is, the doctors who tell you you only have a certain amount of time to live, are often notoriously innacurate, and we are all going to die one day, you're gonna die, i'm gonna die, everyone else is going to die as well, sure, the people you leave behind are going to miss you, and go through heartache whenever you die, whether it happens at 40 or 75, but the fact is, if they know you died happy, those loved ones will know i'm in a better place, and that i'm waiting for them.
I would become a super hero at my 39th b-day
Get right on with family. Everyone is going to cause pain and grief to loved ones, just as those loved ones will one day cause pain and grief when their time comes.
I know lots of young people vow they don't want to live past 40
but believe me (at 57) when you get to 40 you really want to live another 40,
and its even better with your own children.
Yet a person I know was given 3 weeks and now has lived 30 years.
And I'd be thinking I have over 3000 whole days of waking celebrating my lovely family.
At 40 you will have outlived the vast majority of humans that ever lived.
And I'd be thinking the way science is going anything could happen, including stem cells already regenerating and repairing vital organs.
I'd be thinking "until something happens, nothing's happened". and become known as a fount of happiness and joy of life.
We are all scared of our mortality, the Buddhists address that front on, not that I'm a buddhist, but they have great wisdoms in the form of short messages.
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It seems so cruel that nature sets up these great loves in family only to always tear it apart in anguish, pain, grief and loss.
You have the chance to make 3000 golden days where many idly waste them and never get the chance to be their best.
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Write your "story" in 5 pages, then close it and live to the full.
i have written what I will probably say at each of their birthdays up to 40.
I have decided my children can set themselves up with 7 hard years whenever they are mature enough.
I know my wife and kids could survive without me leaving money or a home, by the grace of Australia's world class safety net.
i know they will be visited by me in their dreams.
Perhaps some of this is reconciling and peacemaking that will come to you, like it probably does to all at some stage as we face mortality.
Macarise.
Oddly, you will probably find they'll be keen to marry and have children earlier than their peers, its a form of life's safety net, much as some small bugs run with an egg sac if threatened with peril.
Maybe your family will pack 25 years into 10 years, keep looking for positives.
Have you ever heard the saying "what's good for the goose is good for the gander"? Do what is best for you and it will be best for all involved. I believe the universe is exquisitely laid out this way. Because I have perceived myself as having "lost" certain loved ones does not mean I am not infinitely grateful that they were in my life.
We all have a very short time here. I say live, love and laugh while you can. No one escapes the sorrow of losing loved ones, there is never a good time to say goodbye. Live big, love passionately and laugh until you cry.